Finding A Home For Orphan Diseases

orphanageMany of you know already that I suffer from rheumatoid arthritis, as I have spoken about it many times here on HuffPost, and other places such as CreakyJoints.org. Now, some might say I was cursed, but I learned to live with the disease and figured out how to make it work for me when I can. Of course, this is only possible because there is medications available which control my illness enough to allow me to live my life in a semi-normal fashion (most days). Sure, I have only found a few that actually work to lessen the symptoms of my illness, but they do exist.

Well, recently, I spoke with someone who opened my eyes to an entire class of diseases for which there are few to no medications available, and almost no plans to create any remedies in the near future. These ailments are called “rare” or “orphan” diseases.

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