On a recent road trip, a number of things went wrong, so so wrong. Little things, though, but when you have a chronic illness like R.A., little things can add up to big problems. Just like they did for me.
Ahhh… it’s good to be back! Sorry for the hiatus! So, I thought we’d start again by talking about something that those of us who are ill can have both a surplus and a startling lack of, simultaneously. This is a thing we are often praised by others for having in spades, and something we often curse ourselves for not having enough of. This thing, it’s at the core of what being ill truly means, yet we often take having it or not having it for granted, or both! Have you figured it out yet? It’s strength.
Next year will be the 30thanniversary of my rheumatoid arthritis. An auspicious anniversary to be sure, but I have lived through so much over the tenure of my illness that’s it’s difficult to put into words the full scope of my experiences. There has been a disgusting amount of pain and suffering, but there has also been an equally fantastic amount of learning, meeting people, sharing, and being honored.
The emotional rollercoaster. It sounds like it should be the name of an amusement park ride that evokes such strong feelings that it makes you confess your sins and beg God to grant you safe passage into the afterlife. You know, the kind of ride where you just as soon punch your friend in the face as hug him those first few seconds after you safely disembark. Oh, if ‘twere only true.
So, it looks like I’ll be going under the knife again in just four short weeks. After years of procrastination, it’s time to face the fact that my right ankle can no longer exist in its current state. You wouldn’t think it possible, but a crooked right ankle can affect knees, hips, shoulders, the neck, and, worst of all, the back. My back has been hurting more and more as of late, and it all comes down to the ankle replacement on my right side that somehow, mysteriously, and possibly spontaneously (or so I’m told), became crooked. So, to make a long story short, I now have to undergo another procedure to correct the first procedure. It’s like Russian nesting dolls, I tell you.
Ah, Summertime. The season of baseball, days at the beach, muggy nights, and backyard barbecues galore. Many people look forward to this time of year, and curse the winter with its snow and cold. For me, though, Summer means one thing and one thing above all else – the return of my arch enemy. It’s a fight to the death, and this ice cold foe is always there, ready to drain me of all life force at a moment’s notice. Who is this unholy succubus, you ask? Continue reading “The War Of The Frozen!” »
Lately it seems like everyone has been complaining about medical insurance, and how patients like me consistently get left by the wayside and are forced to suffer. Cost is now the defining factor for whether or not a medicine or procedure gets approved for payment. Fortunately, I had been spared from the worst of it as of late, but a few days ago my two-year lucky streak came to an end, and now the sign in my room reads “03 days since the last insurance debacle.”
Talking Joints, my audio wed storytelling series is garnering some serious acclaim. If you have not listened yet, or are unable to find it, here is the link again. Listen to me opine about some of the crazy things that have happened to me because of my disease, and talk about some of the thoughts and fears that we all share, chronically ill or not. They are only about five minutes each, so it should take no time at all to listen.
Hello everyone! I’m back, and I’m officially a husband! Thank you to everyone who sent well wishes and congratulations. For those who have been asking, you can view some of the amateur photos over at my Facebook fan page, http://www.facebook.com/danielpmalito . It has been a long time coming, and proof that people with autoimmune disease aren’t doomed to a solitary and loveless life. It isn’t going to be easy though – I know no marriage is, of course, but even in Hawaii I was reminded in stark fashion about the third member of our budding marriage – rheumatoid arthritis. Continue reading “The Third Wheel On My Honeymoon – R.A.” »
The TalkingJoints storytelling series, where I recount some of the crazy antics that have befallen me while dealing with different aspects of my disease, is finally here. I apologize that it took so long to come to fruition, but it was a long road o’ hoe. The 5-minute episodes, or what I like to call popcasts, represent more work that you probably realize, so it means a lot to me and the rest of the people who helped make it happen. Enough about hardships, though, let’s talk about how TalkingJoints came into being, and why it’s so important.